This past weekend was mild, with many family visitors that Cyn really enjoyed... even if she did get a bit tuckered out. Our niece visited from Vegas. Since she lived with Cyn and Joe for awhile, it was nice to have her back in town even for just a short visit.
The nausea stayed away for the weekend, for the most part. I returned to San Jose on Monday night, the heat wave was not so bad in the house since the air conditioning kept it comfortable for everyone. Cyn complained of body aches, so we gave her a bit of liquid tylenol through the g-tube (the doctor had said that would be okay if we ever needed it). It didn't help, and in fact about an hour later I found her at the toilet throwing up a little. These days mostly she heaves or brings up some of the water she's been trying to take. Needless to say we are all perplexed about why the nausea is coming back, even if it is just a little bit. Just after 1am she sat up and got nauseous again, dry heaves but that was it. It was then I decided she should have the last Emend dosage. The last dosage I gave her was Thursday before I left and it seemed to last pretty well through the weekend. This dosage seems to be lasting pretty much too, although every once in awhile she has the urge, nothing happens.
We had an appointment with Dr. Chen on Tuesday. He is of course still concerned and perplexed by the nausea but says if the Emend worked then it should be used. However we can only get it when she is going through chemo, so we will likely start with the Haloperidol and Dethamexasone if the nausea really gets going. Cyn also has various cyst type bumps on different parts of her body, most are just under the skin and about the size of gumballs. They started appearing about week 4 thru six of chemo. The doctor says he has not seen that happen before and is concerned that it is also the cancer manifesting itself. He has scheduled another CT scan for Monday, and we will meet with him again on Friday the 8th. Cyn will likely start another round of chemo after that Friday meeting, as Dr. Chen will take a look at the scans to see where we are and then decide on a new cocktail of drugs for the chemo based on what he finds. He wants to do it sooner rather than later, but also wants to give her some time to rest and build more blood cells.
Are we nervous and scared? hell yes. But we are also trying to stay neutral as well as positive with Cyn about what the outcome will be. We are also rather matter of fact in talking about what she'd like to do, what she wants, what she expects. She doesn't say much because I think she is in shock as well. We'll be meeting with the Cancer Support Community folks tomorrow night. They are a resource for cancer patients and families, and will help us all get the information and services we might be needing in the near future.
We are all in for a big fight against this thing, and I personally don't plan to lose.
Your collective positive energies, visualizations and prayers cannot do anything but help Cyn in her fight so please continue them daily as part of your regular life rituals.
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