Long week....

How can it already be Thursday??

Last weekend was a bit challenging for us all. Cyndy's feeding tube became clogged on Saturday, so we had to feed and do meds through the same port- the gastric port. While she is getting food, it appeared that she may have been getting too much food too fast, and as a result she spent the weekend throwing up a lot and not feeling so good.

On Monday, it was radiation therapy as usual and blood tests. Then Joe and Cyn made a trip over to Good Sam (different hospital than where she gets radiation), where they had an appointment to get the tube unclogged. When they arrived the department was running behind because of a couple of emergencies they had to make priority. As a result even with an appointment at 2:30, they did not get seen (and the tube completely replaced) until close to 5:30 and finally home at 6:30 which meant we were behind in medication by a couple of hours. This is the nausea medicine which means that as soon she got home she was throwing up again. After administering the meds things got a little bit back to "normal".

Tuesday was chemo therapy day. Before chemo we met with the doctor who checked her out, and said that her red blood cells had dropped a little. Because he thought she also looked very pale, he scheduled a blood transfusion for Wednesday. Chemo on Tuesday took about 5 hours, then right after chemo, its the usual visit for radiation. After radiation at O'Connor, we had to go by the lab for something called "type and cross", basically they get her blood so that they have type and details in order to order the plasma bags. Doing it the day before the scheduled transfusion saves time on the day of transfusion (about an hour, they say).

Wednesday was a regular radiation appontment, then a visit with the radiation oncologist. Joe asked about Cyns voice and what might be going on there. The Dr. described the nerves for the vocal chords and how they work (pretty good description, by the way) and said he could use a scope and go in to see if his thoughts on what might be happening were correct. Since the transfusion was scheduled right after we were seeing the doctor, Cyn opted out of scoping the same day and asked if he would do it next time we saw him. One procedure a day was enough for her stress level, I agreed an so did Joe.

From there we headed over to the Outpatient Infusion Center, where they were expecting her. The transfusion took about 5 hours (another long day), and they got home around 7pm last night. She was tired from the long day, and went right to bed.

Pretty calm night last night. Although she does cough throughout the night and has to wake me up to stop the food flow to her tube in order to go to the bathroom, it seemed this morning she was a bit stronger and her color was good. She is ambulatory and can go to the bathroom herself, washes up and gets ready for all of her appointments on her own, of course I have to always remind her to slow down as she gets moving quickly and then sometimes gets bit lightheaded. Other than that, we are on a good path today!

Thanks all for your positive visualizations and good healing thoughts... please add "clear food J tube" to you visualizations too! Can't go through another one of those episodes, ugh!!